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Ponderings of an Uncommon Life
I received some important news last week. Although I ought to actually be deriving some relief from it, I have instead been worrying about things that I can’t control. You see, the issue for which I received this news was one of my big… Continue Reading “When I Worry”
Last week I was speaking with a coworker who had seen Helena going outside to play. On her way out, Helena fell down. She told me, “My instinct was to go over to see if she needed help, but before I had time to… Continue Reading “I’m Okay, I’m Okay”
With any disability, there are obvious limitations, and whether one may like it or not, they need to accept some help. Allowing others to help is hard for Helena sometimes – she wants to be like everyone else. And yet help very often results in closer relationships, innovative solutions, and understanding how to prioritize our activities in order to more effectively live life.
Because of Helena’s disability, we have had to adapt to a different way of viewing the world. One of the ways in which we have had to adapt is by having to choose how to respond when people outside of our tight-knit family interact with us.
It has been nearly two weeks since Helena got her second set of casts. The change has been for the most part a huge relief. She had a huge pressure sore forming above her knee that they caught fairly quickly. When Dr. Karol changed… Continue Reading “The Golden Rule Applied”
Without a Paddle 
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