Without a Paddle
Ponderings of an Uncommon Life
Tag: Arthrogryposis
The Stolen Summer
The 2025–2026 school year will be one of the most memorable of my life and career. Helena is the only one of my children who spent her entire elementary school journey on the same campus where I worked. This year, she completed fifth grade… Continue Reading “The Stolen Summer”
Facing Surgery: The Concerns That Fill the Quiet Moments
Helena is finished with school for November and facing a big event this week. She will be having surgery done on one or both of her knees. We have known for a long time that this surgery would eventually happen, but not when or… Continue Reading “Facing Surgery: The Concerns That Fill the Quiet Moments”
Facing Truth
I try to model positivity and a “can-do” attitude regarding Helena’s condition. However- there are times when reality seems to be more painful and moments when the emotions that I can typically keep under control seem to unravel. Today was one of those days.… Continue Reading “Facing Truth”
Learning To Slow Down
We often have unanswered questions about Helena’s condition because AMC is so rare. There are some occasions when we hear something new. In December of 2019, we received some new genetic information about Helena’s condition. At that time, we found out that Helena has… Continue Reading “Learning To Slow Down”
Faith Informed Action
If we are Christians, we should be advocates for the weak, the disabled, and the elderly, just as Jesus was.
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