Without a Paddle
Ponderings of an Uncommon Life
About Me
This is a personal blog about my thoughts and experiences parenting a child with a disability. I am a parent, a teacher, and a woman trying to live the most meaningful life possible.
Welcome to Our Adventure
What is Arthrogryposis Multiplex Congenita (AMC)?
Faith Informed Action
If we are Christians, we should be advocates for the weak, the disabled, and the elderly, just as Jesus was.
God is Enough
If we were able to carry the weight of this world entirely on our own, there never would have been the need of a Savior. There would not have been a reason to send a sovereign God down to earth as a tiny, vulnerable baby to grow up and die on a barren wooden cross.
What Happened to Her?
Because of Helena’s disability, we have had to adapt to a different way of viewing the world. One of the ways in which we have had to adapt is by having to choose how to respond when people outside of our tight-knit family interact with us.
Up and Walking
Things are looking a little better this week. Helena is up and moving! Helena already has forearm crutches and a wheelchair. Now she has a walker. She is pretty unhappy with having to use a walker- “I look like an old lady.” That is…
Helena Update
We had a Dallas appointment again today. In the past 2 months we have been back and forth to the hospital 5 times, been at the ER, stayed in Ronald McDonald house for 3 stays, had 2 surgeries (one to fix a problem we…
Facing Surgery: The Concerns That Fill the Quiet Moments
Helena is finished with school for November and facing a big event this week. She will be having surgery done on one or both of her knees. We have known for a long time that this surgery would eventually happen, but not when or…
Without a Paddle 