Without a Paddle

Ponderings of an Uncommon Life

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About Me

This is a personal blog about my thoughts and experiences parenting a child with a disability. I am a parent, a teacher, and a woman trying to live the most meaningful life possible.

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Welcome to Our Adventure

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What is Arthrogryposis Multiplex Congenita (AMC)?

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Faith Informed Action

If we are Christians, we should be advocates for the weak, the disabled, and the elderly, just as Jesus was.

Posted on June 6, 2020 by musicamom07

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God is Enough

If we were able to carry the weight of this world entirely on our own, there never would have been the need of a Savior. There would not have been a reason to send a sovereign God down to earth as a tiny, vulnerable baby to grow up and die on a barren wooden cross.

Posted on April 15, 2020 by musicamom07

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What Happened to Her?

Because of Helena’s disability, we have had to adapt to a different way of viewing the world. One of the ways in which we have had to adapt is by having to choose how to respond when people outside of our tight-knit family interact with us.

Posted on July 11, 2019 by musicamom07

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Facing Surgery: The Concerns That Fill the Quiet Moments

Helena is finished with school for November and facing a big event this week. She will be having surgery done on one or both of her knees. We have known for a long time that this surgery would eventually happen, but not when or…

Posted on November 17, 2025 by musicamom07

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Pause Before You Approach

When a child’s differences are visible, respect from others should be visible, too. A few weeks ago, my family took a trip down to the “Come and Take It” Festival in Gonzales, Tx. We enjoyed catching up with one of Stuart’s oldest friends and…

Posted on October 28, 2025 by musicamom07

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Facing Truth

I try to model positivity and a “can-do” attitude regarding Helena’s condition. However- there are times when reality seems to be more painful and moments when the emotions that I can typically keep under control seem to unravel. Today was one of those days….

Posted on February 18, 2023 by musicamom07

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Topics
  • Parenting Helena
  • Disability
  • Christianity
  • kindness
  • Arthrogryposis
  • AMC
  • Motherhood
  • Special Needs Parenting
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