Tag: Arthrogryposis

When I Worry

I received some important news last week. Although I ought to actually be deriving some relief from it, I have instead been worrying about things that I can’t control. You see, the issue for which I received this news was one of my big… Continue Reading “When I Worry”

I’m Okay, I’m Okay

Last week I was speaking with a coworker who had seen Helena going outside to play. On her way out, Helena fell down. She told me, “My instinct was to go over to see if she needed help, but before I had time to… Continue Reading “I’m Okay, I’m Okay”

What Happened to Her?

Because of Helena’s disability, we have had to adapt to a different way of viewing the world. One of the ways in which we have had to adapt is by having to choose how to respond when people outside of our tight-knit family interact with us.

AMC Awareness Day

Today is AMC Awareness Day! We are wearing our blue to support Arthrogryposis Awareness! For more information on the condition, go to: About Arthrogryposis #AMCAwareness #BlueforAMC

The Golden Rule Applied

It has been nearly two weeks since Helena got her second set of casts. The change has been for the most part a huge relief. She had a huge pressure sore forming above her knee that they caught fairly quickly. When Dr. Karol changed… Continue Reading “The Golden Rule Applied”