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Ponderings of an Uncommon Life
Today is AMC Awareness Day! We are wearing our blue to support Arthrogryposis Awareness! For more information on the condition, go to: About Arthrogryposis #AMCAwareness #BlueforAMC
It has been nearly two weeks since Helena got her second set of casts. The change has been for the most part a huge relief. She had a huge pressure sore forming above her knee that they caught fairly quickly. When Dr. Karol changed… Continue Reading “The Golden Rule Applied”
When I was little, my mom had an amazing garden that she loved very much. I remember walking into it impressed by the variety of vegetables she had growing . For years, I couldn’t eat canned green beans from the store, because they just… Continue Reading ““Growth” Mindset”
The month of June is Arthrogryposis Awareness month. As we go through this month, I hope to reflect each day on our experiences with Helena’s condition. AMC is an umbrella condition that affects around 1 in 3,000 births. This post, originally published on May… Continue Reading “Perfection Redefined”
Without a Paddle 
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