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Ponderings of an Uncommon Life
Not too long ago, Helena, Rebecca and I drove home from an outing to Baylor and Helena started to wail. “Mommy, I wish you had never let them put those casts on my legs. These aren’t my legs – I will never have my… Continue Reading “Now and Later”
With any disability, there are obvious limitations, and whether one may like it or not, they need to accept some help. Allowing others to help is hard for Helena sometimes – she wants to be like everyone else. And yet help very often results in closer relationships, innovative solutions, and understanding how to prioritize our activities in order to more effectively live life.
Because of Helena’s disability, we have had to adapt to a different way of viewing the world. One of the ways in which we have had to adapt is by having to choose how to respond when people outside of our tight-knit family interact with us.
Today is AMC Awareness Day! We are wearing our blue to support Arthrogryposis Awareness! For more information on the condition, go to: About Arthrogryposis #AMCAwareness #BlueforAMC
It has been nearly two weeks since Helena got her second set of casts. The change has been for the most part a huge relief. She had a huge pressure sore forming above her knee that they caught fairly quickly. When Dr. Karol changed… Continue Reading “The Golden Rule Applied”
Without a Paddle 
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