Without a Paddle
Ponderings of an Uncommon Life
Category: Parenting Helena
Learning To Slow Down
We often have unanswered questions about Helena’s condition because AMC is so rare. There are some occasions when we hear something new. In December of 2019, we received some new genetic information about Helena’s condition. At that time, we found out that Helena has… Continue Reading “Learning To Slow Down”
AMC Awareness Month
June is AMC awareness month. On June 30, people all over the world who have been affected by AMC will wear blue to increase awareness of this rare condition. If you know Helena, I encourage you to wear blue for AMC! Helena’s condition, Arthrogryposis… Continue Reading “AMC Awareness Month”
The Season of No
As a public school music teacher and the mother of kids who are learning remotely (while I work in-person), this school year (and all of 2020) has been one of blessings and of challenges. I believe in being a part of community. I will… Continue Reading “The Season of No”
Faith Informed Action
If we are Christians, we should be advocates for the weak, the disabled, and the elderly, just as Jesus was.
Without a Paddle 
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