Without a Paddle
Ponderings of an Uncommon Life
Category: Parenting Helena
Facing Surgery: The Concerns That Fill the Quiet Moments
Helena is finished with school for November and facing a big event this week. She will be having surgery done on one or both of her knees. We have known for a long time that this surgery would eventually happen, but not when or… Continue Reading “Facing Surgery: The Concerns That Fill the Quiet Moments”
Pause Before You Approach
When a child’s differences are visible, respect from others should be visible, too. A few weeks ago, my family took a trip down to the “Come and Take It” Festival in Gonzales, Tx. We enjoyed catching up with one of Stuart’s oldest friends and… Continue Reading “Pause Before You Approach”
Facing Truth
I try to model positivity and a “can-do” attitude regarding Helena’s condition. However- there are times when reality seems to be more painful and moments when the emotions that I can typically keep under control seem to unravel. Today was one of those days.… Continue Reading “Facing Truth”
Learning To Slow Down
We often have unanswered questions about Helena’s condition because AMC is so rare. There are some occasions when we hear something new. In December of 2019, we received some new genetic information about Helena’s condition. At that time, we found out that Helena has… Continue Reading “Learning To Slow Down”
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